When nothing goes to plan

So where was I the last time I blogged? Had just had a modified radical neck dissection and was waiting on pathology results Was planning for an allogeneic haematopoietic stem cell transplant And what was the outcome of these? Modified radical neck dissection: unsuccessful Allogeneic haematopoietic stem cell transplant: didn’t happen Sigh. After I woke […]

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Me in a snapshot

I am frequently asked how so much has happened to one person, and when it all happened! I thought it might be easier to give a quick snapshot with a timeline. I have hyperlinked where there is a corresponding blog entry, if you are so inclined. 0-16 1993-2009: HAPPY AS LARRY. Besides childhood asthma, honestly […]

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Genetic testing results – the best possible ending to my year!

There aren’t enough superlatives to describe how happy I am that this year is nearly over. It started in March with an excruciating flare of my lymphocytic enterocolitis, and rolled into April with laser surgery on my dysplasia. A couple of days later I ended up in the ICU with hypokalaemic paralysis (which led to […]

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Hiccups, perspective & resilience

Hi everyone 🙋, I’m going to preface this blog post by letting you know I never planned on writing it. I have told myself repeatedly over the past weeks that it would not be good for my mental health to blog about what is happening to my body. But I wanted to update you all […]

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