We were recently scratching our heads as to what we could do to raise funds for melanoma research as well as increasing awareness of the critical need to get regular skin checks. And then bingo, a ‘light bulb moment’ flashed in front of our eyes and we designed and manufactured these very attractive stainless steel, […]
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So where was I the last time I blogged? Had just had a modified radical neck dissection and was waiting on pathology results Was planning for an allogeneic haematopoietic stem cell transplant And what was the outcome of these? Modified radical neck dissection: unsuccessful Allogeneic haematopoietic stem cell transplant: didn’t happen Sigh. After I woke […]
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There aren’t enough superlatives to describe how happy I am that this year is nearly over. It started in March with an excruciating flare of my lymphocytic enterocolitis, and rolled into April with laser surgery on my dysplasia. A couple of days later I ended up in the ICU with hypokalaemic paralysis (which led to […]
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A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. Since beginning this series on MS DMDs, I have been diagnosed with Common Variable Immune Deficiency which we […]
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Warning: there is graphic content in this post. Continue at your own p-ear-il and if you’re easily queasy maybe st-ear cl-ear 😂 There’s not much of a bigger vibe killer than being told you have cancer. The doctor at the skin cancer clinic delivered me the news over the phone on a Wednesday afternoon whilst I […]
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Well, well, well. I did say I wouldn’t update this blog again until I had neutrophils, and now I have NEUTROPHILS!!! As I’m sure you’re already well aware if you’re reading this, because I have shouted it emphatically at anyone and everyone within physical and digital hearing range. Not only have I had neutrophils for […]
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Hi everyone 🙋, I’m going to preface this blog post by letting you know I never planned on writing it. I have told myself repeatedly over the past weeks that it would not be good for my mental health to blog about what is happening to my body. But I wanted to update you all […]
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Wow, I have had one of those weeks. No – not one of those weeks where you mess everything up at work, then drunkenly message boys you should not be drunkenly messaging before eating a whole pizza and a box of donuts (I can do this and I am not even ashamed). No, not that type. […]
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A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. How anyone decides to live with MS is their own extremely personal choice, however I will always take the […]
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As invariably happens with time, hours have ticked into days, into weeks, and into months, and now I find myself once more at the finish line of another year. And with the end of a year comes ‘should haves’, ‘would haves’, ‘could haves’ and ‘why did you do thats’, along with a range of other […]
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Don't MS with Morgs 