Gilenya (fingolimod)

A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. Since beginning this series on MS DMDs, I have been diagnosed with Common Variable Immune Deficiency which we […]

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~ Neutrophilicious ~

Well, well, well. I did say I wouldn’t update this blog again until I had neutrophils, and now I have NEUTROPHILS!!! As I’m sure you’re already well aware if you’re reading this, because I have shouted it emphatically at anyone and everyone within physical and digital hearing range. Not only have I had neutrophils for […]

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Hiccups, perspective & resilience

Hi everyone 🙋, I’m going to preface this blog post by letting you know I never planned on writing it. I have told myself repeatedly over the past weeks that it would not be good for my mental health to blog about what is happening to my body. But I wanted to update you all […]

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Welcome to the family – CVID?!

Wow, I have had one of those weeks. No – not one of those weeks where you mess everything up at work, then drunkenly message boys you should not be drunkenly messaging before eating a whole pizza and a box of donuts (I can do this and I am not even ashamed). No, not that type. […]

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Zinbryta (daclizumab)

A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. How anyone decides to live with MS is their own extremely personal choice, however I will always take the […]

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Post surgery musings

This week I had another of my all-too frequent reminders of my wafer-thin mortality. Even with so many things wrong with me, it’s amazing how my problems seem to fade into the background between specialist appointments – not that I’m not constantly aware that I have them but against the backdrop of my busy life it’s […]

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Being diagnosed with MS – part 1

It sounds bizarre, but I’ve heard tales from many that being diagnosed with MS is a relief: ‘Finally an explanation for my numb legs and lack of balance!’ ‘Oh, so that’s why I can’t move my hand properly!’ ‘Great, I know what’s wrong and now I can start treatment!’ I didn’t know how anyone could […]

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