EXCITING NEWS ON TREATING MULTIPLE SCLEROSIS

We are pleased to announce that the Morgan Mansell Fund recently ticked over the $10,000 mark in grants made towards MS research, including the fantastic research being undertaken by Prof Helmut Butzkueven’s team at Monash. Their ground breaking research into why MS symptoms decline for most women during pregnancy has far wider implications as it […]

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Gilenya (fingolimod)

A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. Since beginning this series on MS DMDs, I have been diagnosed with Common Variable Immune Deficiency which we […]

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~ Neutrophilicious ~

Well, well, well. I did say I wouldn’t update this blog again until I had neutrophils, and now I have NEUTROPHILS!!! As I’m sure you’re already well aware if you’re reading this, because I have shouted it emphatically at anyone and everyone within physical and digital hearing range. Not only have I had neutrophils for […]

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Hiccups, perspective & resilience

Hi everyone 🙋, I’m going to preface this blog post by letting you know I never planned on writing it. I have told myself repeatedly over the past weeks that it would not be good for my mental health to blog about what is happening to my body. But I wanted to update you all […]

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Welcome to the family – CVID?!

Wow, I have had one of those weeks. No – not one of those weeks where you mess everything up at work, then drunkenly message boys you should not be drunkenly messaging before eating a whole pizza and a box of donuts (I can do this and I am not even ashamed). No, not that type. […]

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Zinbryta (daclizumab)

A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. How anyone decides to live with MS is their own extremely personal choice, however I will always take the […]

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Post surgery musings

This week I had another of my all-too frequent reminders of my wafer-thin mortality. Even with so many things wrong with me, it’s amazing how my problems seem to fade into the background between specialist appointments – not that I’m not constantly aware that I have them but against the backdrop of my busy life it’s […]

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