Living with MS (video)
This is a speech I gave at a fundraising dinner in May 2018 on life with MS.
Read MoreTag: autoimmune disease
Surprise! It’s a melanoma.
Warning: there is graphic content in this post. Continue at your own p-ear-il and if you’re easily queasy maybe st-ear cl-ear 😂 There’s not much of a bigger vibe killer than being told you have cancer. The doctor at the skin cancer clinic delivered me the news over the phone on a Wednesday afternoon whilst I […]
Read More~ Neutrophilicious ~
Well, well, well. I did say I wouldn’t update this blog again until I had neutrophils, and now I have NEUTROPHILS!!! As I’m sure you’re already well aware if you’re reading this, because I have shouted it emphatically at anyone and everyone within physical and digital hearing range. Not only have I had neutrophils for […]
Read MoreWelcome to the family – CVID?!
Wow, I have had one of those weeks. No – not one of those weeks where you mess everything up at work, then drunkenly message boys you should not be drunkenly messaging before eating a whole pizza and a box of donuts (I can do this and I am not even ashamed). No, not that type. […]
Read MoreZinbryta (daclizumab)
A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. How anyone decides to live with MS is their own extremely personal choice, however I will always take the […]
Read More2016: the year that was
As invariably happens with time, hours have ticked into days, into weeks, and into months, and now I find myself once more at the finish line of another year. And with the end of a year comes ‘should haves’, ‘would haves’, ‘could haves’ and ‘why did you do thats’, along with a range of other […]
Read MoreTecfidera (dimethyl fumarate)
I am currently on my fourth treatment for MS (about to move onto my fifth!) so I consider myself a bit of an anecdotal expert on MS medications. I thought I’d put together a post on each drug I’ve tried and my experiences. Like having MS doesn’t mean I’m abnormal enough – my body keeps […]
Read More