Living with MS (video)

May 30, 2018.Reading time less than 1 minute.

This is a speech I gave at a fundraising dinner in May 2018 on life with MS.

Surprise! It’s a melanoma.

October 1, 2017.Reading time 19 minutes.

Warning: there is graphic content in this post. Continue at your own p-ear-il and if you’re easily queasy maybe st-ear cl-ear 😂 There’s not much of a bigger vibe killer than being told you have cancer. The doctor at the skin cancer clinic delivered me the news over the phone on a Wednesday afternoon whilst I […]

~ Neutrophilicious ~

September 8, 2017.Reading time 21 minutes.

Well, well, well. I did say I wouldn’t update this blog again until I had neutrophils, and now I have NEUTROPHILS!!! As I’m sure you’re already well aware if you’re reading this, because I have shouted it emphatically at anyone and everyone within physical and digital hearing range. Not only have I had neutrophils for […]

Welcome to the family – CVID?!

May 12, 2017.Reading time 16 minutes.

Wow, I have had one of those weeks. No – not one of those weeks where you mess everything up at work, then drunkenly message boys you should not be drunkenly messaging before eating a whole pizza and a box of donuts (I can do this and I am not even ashamed). No, not that type. […]

Zinbryta (daclizumab)

February 19, 2017.Reading time 7 minutes.

A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. How anyone decides to live with MS is their own extremely personal choice, however I will always take the […]

2016: the year that was

December 22, 2016.Reading time 4 minutes.

As invariably happens with time, hours have ticked into days, into weeks, and into months, and now I find myself once more at the finish line of another year. And with the end of a year comes ‘should haves’, ‘would haves’, ‘could haves’ and ‘why did you do thats’, along with a range of other […]

Tecfidera (dimethyl fumarate)

November 1, 2016.Reading time 11 minutes.

I am currently on my fourth treatment for MS (about to move onto my fifth!) so I consider myself a bit of an anecdotal expert on MS medications. I thought I’d put together a post on each drug I’ve tried and my experiences. Like having MS doesn’t mean I’m abnormal enough – my body keeps […]