We are pleased to announce that the Morgan Mansell Fund recently ticked over the $10,000 mark in grants made towards MS research, including the fantastic research being undertaken by Prof Helmut Butzkueven’s team at Monash. Their ground breaking research into why MS symptoms decline for most women during pregnancy has far wider implications as it […]
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This is a speech I gave at a fundraising dinner in May 2018 on life with MS.
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Warning: there is graphic content in this post. Continue at your own p-ear-il and if you’re easily queasy maybe st-ear cl-ear 😂 There’s not much of a bigger vibe killer than being told you have cancer. The doctor at the skin cancer clinic delivered me the news over the phone on a Wednesday afternoon whilst I […]
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Well, well, well. I did say I wouldn’t update this blog again until I had neutrophils, and now I have NEUTROPHILS!!! As I’m sure you’re already well aware if you’re reading this, because I have shouted it emphatically at anyone and everyone within physical and digital hearing range. Not only have I had neutrophils for […]
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Wow, I have had one of those weeks. No – not one of those weeks where you mess everything up at work, then drunkenly message boys you should not be drunkenly messaging before eating a whole pizza and a box of donuts (I can do this and I am not even ashamed). No, not that type. […]
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A disclaimer – I realise that this series of posts on medication are quite negative. In no way, shape or form am I advocating to pursue life post-diagnosis without treatment unless that is advised by a neurologist. How anyone decides to live with MS is their own extremely personal choice, however I will always take the […]
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As invariably happens with time, hours have ticked into days, into weeks, and into months, and now I find myself once more at the finish line of another year. And with the end of a year comes ‘should haves’, ‘would haves’, ‘could haves’ and ‘why did you do thats’, along with a range of other […]
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I am currently on my fourth treatment for MS (about to move onto my fifth!) so I consider myself a bit of an anecdotal expert on MS medications. I thought I’d put together a post on each drug I’ve tried and my experiences. Like having MS doesn’t mean I’m abnormal enough – my body keeps […]
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This week I had another of my all-too frequent reminders of my wafer-thin mortality. Even with so many things wrong with me, it’s amazing how my problems seem to fade into the background between specialist appointments – not that I’m not constantly aware that I have them but against the backdrop of my busy life it’s […]
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There is no excerpt because this is a protected post.
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